Skip to content

MyHealthspace: Forget dating, we’re dying here!

Many years ago, there were a few influential academic articles that predicted that the coming web of information technology would cause more activities to be performed in a market, not within the walls of the firm. My friend and colleague Chunka Mui, wrote about this is his book Unleashing the Killer App, which noted that information technology was changing transaction costs, which in turn changes the boundaries of the firm. Almost every day the business press contains some reference to this trend — either directly or indirectly. In the Thursday July 13, 2006 Wall Street Journal, there are two articles — one on how car buying continues to change, not only due to the information sources like www.edmunds.com (check out my old Harvard Business School case on Edmunds for the back-story), as well as the influence of social networks like LinkedIn, on job finding. Both phenomena are “market” solutions for activities previously handled within firms. Markets are social networks, with some specialized rules, and we will continue to see the enhancement of markets for everything including cars, jobs, and the like.

What I find fascinating, and was first pointed out to me by my friend John Henderson, is that the “market” for healthcare — on a local level — has yet to be created — and in this I am not talking about the Heathcare Savings Accounts/High Deductible Health Plans (although these will figure into it); I am talking about the coordination of doctors, care givers, the hospital or clinic, and family members — just to name a few. Despite the importance of this process, and the vast use of the internet, there is yet no “market” or social network site, that helps to coordinate such activities. Imagine if WebMD, interoperated with LinkedIn, with open interfaces to content sites like the American Cancer Society’s cancer support group, and open links (with appropriate security of course) to care giving organizations like Kaiser Permanente. This would allow for what my friends who study social networking call “self synchronization” of all the relevant parties to meet the care needs of the sick or elderly person.

You need at least two things for self synchronization: first, situational awareness for all the relevant parties and second, a reallocation of decision rights. For example, my Dad recently had arterial surgery, and my two brothers and I (and our families) coordinated about who would take him to the hospital, visit him, and take care of him when he recovered back at home. There are millions of people who are undergoing this exact process of care, each in their own way. Everyone knows that the most basic communication about status on diagnoses, care, oversight, and companionship takes phone calls, emails, and a host of visits. What I wanted, and I think millions need, is an easy way to share situational awareness across everyone involved: the family, the doctors, the physical therapists, etc. In short, we need a “MySpace” for my Dad’s health, and for anyone who is sick. (Of course, in the near future, this information environment will also contain telemetric data such as his blood sugar, movement, blood pressure, etc., to the extent he will allow himself to be “instrumented” — and should be part of the space too.)

This MyHealthspace needs also to have clear sign-in rights, and some notion of who can do what — not unlike what is implemented in instant message systems. Imagine a space where someone, like my dad, could list a need for a physical therapist in Marshfield, who is accustom to working with Octogenarians, who have just recovered from surgery. The market for local talent who could fill that need will arise around the demand. Furthermore, if there are emergent reputation networks — as LinkedIn and others support, it would help me, or my brother or my dad choose whom to trust. Perhaps my brother, who is a doctor, could go ahead and schedule a visit by the therapist, and get access to his or her notes on my dad. Situational awareness, and allocation of decision rights can unleash the power of community as it regards medical care. Today, there are too many barriers to that self synchronization, which is not only inefficient, but often causes undue stress on the patient and the family.

I believe the only way that the USA will put a dent in generating a sufficient supply of potentially humane health care will be to help to create the markets that enable the ends of the network to self organize. In a certain way, MyHealthspace would be a new fangled coordination tool to help dispersed, over-busy families, take care of their families in a manner similar to how they did two hundred years ago before the industrialization of the economy scattered us, and professionalized the care of the elderly and infirm.

{ 4 } Comments

  1. Amit Kumar | July 15, 2006 at 11:28 am | Permalink

    In a more general context, I find the existing social networks overly restrictive. Myspace and orkut may be good dating sites but their design do not facilitate community interactions. There is a need for
    1. fine-grained user permissions to community blogs
    2. sub-communities within communities
    3. An “oplosed” open-closed architecture - user permissions for closedness to spammers and outsiders, open to RSS, emails and mobile integration; and open to web plugins.

    One can imagine such communities site to have a plugin for health - these plugins can be written by anyone - that would be really cool.

    In a related context of blogging and web page making, Infogami (http://www.ingofami.com) looks quite promising since it implements point 1.

    This idea has been bothering me for quite some time now. What do you say?

  2. Clyde Smith | July 23, 2006 at 5:39 am | Permalink

    I’m glad I didn’t get around to reading this post till this weekend.

    Friday night I attended a wake for a 90 year old relative that had passed away. For a large chunk of the evening I spent time with others from her generation, talking about their health issues and realizing I was interacting with a whole group of relatives that were preparing to pass.

    The biggest shell shock seemed to be coming from the ones who were strongly feeling the presence of death and simultaneously battling problems that included medical misdiagnosis and hospital mistakes with medications.

    The other group most in shock were the ones supporting those folks and facing both their own mortality and the stress of elder care.

    A secure way to network in the manner you describe could be a really good thing for folks in such positions.

    On the other hand, their deep and justifiable suspicion of the medical “community” might be the biggest barrier to such systems, especially if doctors have the ability to survey all such records at will.

    Unfortunately, the perceived arrogance of doctors (my mom was a career nurse and big picture reports tend to confirm her critiques), especially in hospital settings, may well be the strongest barrier to the development of such a system.

    In my honest opinion, the trust is just not there. However, if such a system is perceived as empowering the “consumer”, you might be on to something.

  3. Unity Stoakes | September 5, 2006 at 9:28 pm | Permalink

    We aren’t distributing the press release until next week, but you and your readers may be interested to know we are launching a health-focused social networking site called OrganizedWisdom (http://www.organizedwisdom.com) in a few days. Our goal is to make it easy for patients, physicians, health professionals and health organizations to collaborate and share health wisdom. Our first version has a great set of features, but we have many more of the features you write about in development now. While we are in just the beginning stages of building this new health community, your suggestions and feedback would be very much appreciated. For marketing info about what we are building visit http://www.organizedwisdom.info. Thanks for a great post!

  4. Turner | November 2, 2006 at 1:40 pm | Permalink

    I’ve found http://www.carepages.com very useful in following a young cousin’s progress as she fights cancer. The web site is trying to address the unique communications needs among family and friends when someone is ill and/or hospitalized. The twists on a basic message board model are simple but effective in addressing everyone’s need to communicate as well as the immediate family’s need to consolidate communications.

{ 2 } Trackbacks

  1. Deviant Abstraction | July 15, 2006 at 8:43 am | Permalink

    Generalization of Social Networks

    MySpace is all the rush now. Everybody thinks social networks those days (therefore graph and OR) . And they are right. This post blogs about vertical social networks. They will be probably be really important. Who would like his LinkedIn and MySpace p…

  2. Futurelab's Blog | July 17, 2006 at 3:26 am | Permalink

    MyHealthspace: Forget dating, we’re dying here!

    by: John Sviokla Many years ago, there were a few influential academic articles that predicted that the coming web of information technology would cause more activities to be performed in a market, not within the walls of the firm….

Post a Comment

You must be logged in to post a comment.